At home, I had to accept that my fatigue was in charge. Mornings were especially slow as I creaked and winced out of bed. I felt like an old car that needed to have its crankcase oil heated before it would start.
I soon learned that just shuffling around the block can be draining, that there’s power in the spontaneous nap, and that you need to set strict visiting hours. Your fatigue – your body – needs what it needs.
But just because you’re spent, it doesn’t mean you can sleep at night. I became buddies with the sleep that isn’t sleep, staked to my bed by pain and anxiety. No matter where I tucked the pillows, I couldn’t get comfortable. No matter how good the music murmuring from the CD player, I couldn’t be soothed.
Even now, a month after my last radiation session, the fatigue still swells late in the afternoon and breaks over me. When 5 o’clock rolls around I’m more zombie than employee. I’m in bed by 10 most nights. And weekend naps are nonnegotiable.
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